Summer Adventures

I have been busy enjoying life to its fullest this summer! Whether you have money or not there are many ways you can do this. To me it begins with you inside your soul knowing who you are. Learn to love yourself. Work on what you do not like, if it truly needs fixing, see a therapist if some help is needed and/or speak with your primary physician if need be. Why not live life as it is short and you never know what can happen tomorrow.

Here is what has been blessed upon me and mine. I have had the chance to go back to college and in the nursing field. I start August 22nd for nursing school. I am so happy to finally be able to finish this dream in my life! I had to take care of some mental health issues along with physical health issues. I am stable on both ends. I follow up with my physicians and worked hard to get where I am. I even began to work again, part time in assisted living. It is just right for me. I even was blessed with a car from my pastor. What are the chances?

I prayed God you put it in front of me. You help me with my anxiety, depression, Bipolar, and PTSD. He did. I prayed help me with my Stage 4 Chronic Kidney Disease and I am stable with 20% kidney usuage. Scary at that amount but great compared to where I started nearly two years when diagnosed. I may not be in “perfect” health but what is the picture of health today? I feel that I am doing fabulous!

Don’t get me wrong that I still get fatigued, I am w working two nights a week and one evening shift. I do have a chronic illness with no cure and it takes a toll on me but I am managing it and found a way too.

So I decided to live life by doing what I like, get back to working in the health care field. It is where I was at my best. It is what I know and I enjoy the people.

I also decided to live life by getting outside by walking downtown in Galena. Attending church frequently, hard on the night shifts I work the night before. But I’m managing as I can listen to the service online.

David and I have been going to the lake this summer enjoying the boat, the pool, swimming and relaxing.

Look for ways to enjoy your blessings in life. Find ways to do things without the cost so high. This can be year-round. The pictures below are from where we go in Apple River, Illinois called Apple Canyon Lake.

Thank You Readers

I wanted to thank all my readers for letting me reach out and share this month about Kidney Disease Awareness. I know we have awareness about so many things year round. I love to learn and hear about it all. I wish I could donate to all, even to those that apply to my life. I am sure we all want to help. But I find it helpful to be aware of what is going on. It is a way we can help or share information.

I look forward to learning more from my readers monthly and sharing with you as well.

WORLD KIDNEY DAY

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Kidney Awareness Month

March is Kidney Disease Awareness Month. This means so much to me; mainly because in October 2017 I was diagnosed with Stage 4 Chronic Kidney Disease. No signs or symptoms hit me right out. I was fatigued and had my nausea but that could have been due to my medications at the time. No I did not have diabetes or heart issues. Those are the two common threads connecting with CDK. I did a random blood screening and found out by that. I was shocked. It took until January 2018 to figure out what caused this disease. My GFR was at 15%, that is the percentage of my kidney levels. I find that very scary I was wondering around in life with that low of the usage of my kidneys. I was not set up to go on dialysis at all. The Nephrologist I had at that time wanted me to wait. I went in for biopsies. He took three tiny pieces from my left kidney. I was hospitalized for a couple days. My pain pain increased post biopsy. That is not normal for me and was sent home. I spent the next two days decreasing energy and color along with severe pain. I went in to the ER where I lived and ended up back in the hospital for about a week. I had internal bleeding and was at End Stage Kidney Disease. Still no dialysis. My GFR went back to 15%. From that ER admit my health declined due to my CKD. Unfortunately with this disease these things happen. I found out in the hospital that my biopsies had shown Chronic Interstitial Nephritis. At least I knew it was from my new prescription I had been taking about 8-9 months which was the”main” cause of this. I still had no clue what to expect.

I always knew life was short and to enjoy the quality of life. I have taken care of my mom on Hospice and worked in the hospitals before, so I comprehend life. While in the hospital my anemia was bad, never cured and still not. I do my best but I stay stable with this disease. That is the best you can do. No sad thoughts, nothing negative, look for the good. I have learned to accept what happens in life and just be a big girl and deal with it. I have issues with depression and anxiety but I am at the stage of managing it in my life. I go to a therapist and see a psychiatrist. I follow up with my primary physician as well as my Nephrologist. I am trying to find one that is not 3 hours away from me. But if I do not do what I need for me, what’s the point? God created me in His own image. He wanted me on this Earth for something so why not do something good with and care for my body as well. Stuff happens and I no longer want to be a people pleaser and I know I cannot fix everything. Yes I wish I could fix when my girls struggle or are hurt. I wish I could have taken away my sister’s breast cancer and her radiation. I’m grateful her cancer was found early and not that long for her radiation treatment. But she still had to hear those words. Those words she heard I cannot take away. I never want that for anyone, especially in my family. Then I think about the bills, ugh insurance does not cover it all. I’m broke without an income and would love to just give her money for all the wonderful things she has done for me and my daughter’s and grandson.

So I need to care for my kidney disease or I cannot help or be there for anyone. I will not get to see my girl’s do more in their lives, my grandson grow up or more grandkids hopefully. 🤗 And I will not get to hear my sister say she is fine with that radiation! These are things I want to be here for.

So if you are out there and have any chronic illness know that you are not the only one. There are ways and groups to get involved in. You can connect with others so you have support. Find a way to survive.

For more information about kidney disease please go to www.kidney.org. You can also check out www.kidneyschool.org. Both sites have valuable information. As well as www.davita.com and more information about becoming a donor please check out organdonor.gov.

Coffeeless

This morning that is exactly how I feel, coffeeless. I just made this word up. I was in the kitchen getting a cup of coffee. I was walking out of my kitchen with an empty juice glass. Yep I needed to wake up a bit more this morning.

I really needed my coffee this morning. Well, technically need and want are two different words. And I am a true coffee girl! We all have our special likes and needs in this world.

Right now David and I are doing these “diets”. I just do not care for the way that word had been used in my lowly 49 years of life. “A diet” should be something we need to eat in order to nurish our bodies. We need to nurish our bodies to survive and live in a healthy way. I looked up the word diet on Google. This is what I found:

Well, there it is the restrictions, etc. But sometimes with your health you need to do that. The word diet in this search is a noun and verb. I find this interesting. I would love to hear from my readers as what you think about the word “diet”. I am up to learning something new everyday.

My diet consists of a renal diet. I do this because I have Stage 4 Chronic Kidney Disease. I also choose to do this because:

1. Nephrologist just says just watch your sodium intake and protein.

2. I personally feel I need to do more for my CKD with my research.

3. I spoke with my PCP, he is an internist and 5 minutes from me, he is pleased I want to take action.

4. Let’s do this meal plan for you and to help you have quality of life for your stage in CKD.

So I feel that since I have had this disease (15 months now) I speak up even more for myself. I have no problem following the guidelines for a renal diet. I just really want my coffee to wake me up!!

Oh I know with health issues we may need to eat less of something, etc. I want a good quality of life with my family, no doubt. Things can be enjoyed with moderation, I get that. But I feel we should also enjoy our lives.

So no more making me coffeeless and on a tangent of nothingness again. Hope you all have a great day! Please tell me what you think about diets and if there something you need or want to get started for your day. I do have more things to get my day going but I was stomped with this coffeeless feeling. I hope you are all smiling and laughing! 🤪🤪